“Can you please wash my hair?” I asked one of my caregivers, Brandi, “I’m going to a meeting tomorrow.”
Brandi always complained about washing my hair because the floor would get all wet. She was one of a series of agency employees who never showered me. Well, I still needed my hair washed. I belonged to a lot of committees and had meetings to attend. And I liked to look presentable. Even though she washed me, it wasn’t the same as having a shower. I felt like my rights were being violated.
After I got home from having hip replacement surgery in 2017, I needed 12 hours of care a day, because I could no longer crawl. I’d previously had staff who would meet my needs, like showering and preparing my meals. But after the surgery I needed help getting in and out of my wheelchair, going to and from the toilet, and getting in and out of bed. Some caregivers were nice; we would go out to lunch, go shopping, watch movies. But some were downright rude and selfish. All they thought about was themselves. And nobody wanted to come in on time.