I’ll never forget that day in the neurologist’s office when he told me he knew what I had. I turned to my mom, pointed my index finger right in her face, and said “I TOLD you I wasn’t crazy!” and she looked back at me with tears in her eyes and said, “I know.”
My life changed forever 10 years ago. I mean it first changed forever in September 2009 when I got “sick”. Then it changed again on January 9, 2010, when that “sick” got a name: Postural Orthostatic Tachycardia Syndrome, aka POTS.
POTS turned my world upside down in an instant. I haven’t seen straight in 10 years. Ten years worth of dizziness and vertigo; my world tilts and spins all day, every single day. Ten years worth of muscle weakness, numbness, and my legs giving out from underneath me. Years of presyncope including, but not limited to, visually blacking out or getting washes of color over my vision. Fatigue, so different from being “tired”: I used to sleep over 18 hours a day and still wake up exhausted, and I slept through the majority of high school. And I can’t forget a decade of chronic dehydration, hypovolemia (low blood volume), blood pressure problems, and sky-high heart rates. The list goes on and on.